Following on from the success of the Newcastle and Melbourne Family Day events we are excitedly planning a Family Day in Brisbane on September 16, 2023.

This event will coincide with Usher Syndrome Awareness Day which is celebrated globally to raise awareness around the world, connect those living with Usher syndrome, and accelerate research towards treatments and a cure.

We’re still finalising the details of the day but it will include a research update on the various studies in Australia and abroad that are focusing on the clinical treatment of retinitis pigmentosa, the eye condition associated with Usher syndrome. It will also include lots of fun things for the children and teens.

UsherKids Australia recognises how important it is to bring our families together from wherever they are located across the country. With this in mind, we are working on providing financial support to our families to fly in for this event if cost is a barrier. If you live interstate and are interested in attending, please contact

We’re hoping to see as many of our families get up to beautiful Brisbane for this event.

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