by Emily Shepard | Sep 18, 2021 | News
We are overwhelmed with the funds raised so far by Usher champion Anthony who is running a marathon on behalf of his nephew, Jett, who has recently been diagnosed with Usher syndrome. Anthony, along with his brothers and friends are either running a Marathon (42.2km),...
by Emily Shepard | Sep 7, 2021 | Media
More than 400,000 people across the world are living with Usher syndrome. To celebrate Usher Syndrome Awareness Day on 18 September 2021, we have created a range of social media tools to help raise the profile of this rare disease and the impact it has on...
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