Jett’s Journey – 13 November, 2021

Jett’s Journey – 13 November, 2021

We are overwhelmed with the funds raised so far by Usher champion Anthony who is running a marathon on behalf of his nephew, Jett, who has recently been diagnosed with Usher syndrome. Anthony, along with his brothers and friends are either running a Marathon (42.2km),...
#USHDAY 18 SEPTEMBER 2021

#USHDAY 18 SEPTEMBER 2021

More than 400,000 people across the world are living with Usher syndrome. To celebrate Usher Syndrome Awareness Day on 18 September 2021, we have created a range of social media tools to help raise the profile of this rare disease and the impact it has on...
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