Latest News
Smashing our fundraising goals at Run Melbourne 2026
So much fun, so much effort, and so much love towards getting our young people with Usher syndrome to camp next year. Thanks to everyone for joining us, helping spread awareness and raising funds...
Deafblind Awareness Week 2026
Today, ahead of Deafblind Awareness Week, I had the privilege of standing on the steps of Parliament House alongside my son Louis, members of the deafblind community, families, advocates and sector...
UsherKids Australia named finalist in national award
We are incredibly proud to share that UsherKids Australia has been named a finalist in the 2025–26 Research Australia Health and Medical Research Awards. Research Australia's awards recognise...
UsherKids Australia Family Weekend
What a weekend. Over 80 people joined us for the UsherKids Australia Family Weekend - babies, children, teens, young adults, parents, grandparents, siblings, volunteers and staff - all coming...
New book now available! Usher Syndrome – About Us, By Us
Now available!!!!! Usher Syndrome – About Us, By Us is a lived-experience resource on Usher Syndrome, covering its types, prevalence, and the realities of parenting, education, work, and aging,...
Genomic Testing Access for Hearing Loss Must Catch Up to the Evidence
Now available!!!!! Usher Syndrome – About Us, By Us is a lived-experience resource on Usher Syndrome, covering its types, prevalence, and the realities of parenting, education, work, and aging,...
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