Events
Join us at various events during the year and help create connections within the Usher community.
UsherKids Australia has Charity and deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC). All donations over $2 are tax deductible.
Join Our UsherKids City2Surf Team!
Be Part of the World’s Largest Fun Run – Sydney 13 August 2023
We are very excited to have a large group from our Usher community taking part in the upcoming City2Surf Fun Run in Sydney on 13th August 2023. Would you like to donate to this great cause and raise funds for our upcoming teen programs at UsherKids Australia? Donate via the below link today!
Would you like to run/jog/walk 14km with us while we raise awareness and funds for UsherKids Australia? If so, please email tracey@usherkidsaustralia.com for more information.
It is going to be a great day!
Join Our UsherKids City2Surf Team!
Be Part of the World’s Largest Fun Run – Sydney 13 August 2023
We are very excited to have a large group from our Usher community taking part in the upcoming City2Surf Fun Run in Sydney on 13th August 2023. Would you like to donate to this great cause and raise funds for our upcoming teen programs at UsherKids Australia? Donate via the below link today!
Would you like to run/jog/walk 14km with us while we raise awareness and funds for UsherKids Australia? If so, please email tracey@usherkidsaustralia.com for more information.
It is going to be a great day!
Usher Syndrome Awareness Day 2023
Family Day in Brisbane
Celebrating our Growing Global Community
Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 16 this year. Usher Syndrome Awareness Day seeks to bring attention to the most common genetic cause of combined deafness and blindness. By raising awareness around the world, we connect those living with Usher syndrome and accelerate research towards treatments and a cure.
To celebrate, we will be hosting a Family Day in Brisbane on Saturday, 16th September 2023 from 10am-3pm. The day will include a research update on the various studies in Australia and abroad that are focusing on the clinical treatment of retinitis pigmentosa, the eye condition associated with Usher syndrome. It will also include lots of fun things for the children and teens, including a visit from our friends at Ocean Life Education.
If you would like more details, please email tracey@usherkidsaustralia.com.
We’re hoping to see as many of our families get up to beautiful Brisbane for this event.
Usher Syndrome Awareness Day 2023
Family Day in Brisbane
Celebrating our Growing Global Community
Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 16 this year. Usher Syndrome Awareness Day seeks to bring attention to the most common genetic cause of combined deafness and blindness. By raising awareness around the world, we connect those living with Usher syndrome and accelerate research towards treatments and a cure.
To celebrate, we will be hosting a Family Day in Brisbane on Saturday, 16th September 2023 from 10am-3pm. The day will include a research update on the various studies in Australia and abroad that are focusing on the clinical treatment of retinitis pigmentosa, the eye condition associated with Usher syndrome. It will also include lots of fun things for the children and teens, including a visit from our friends at Ocean Life Education.
If you would like more details, please email tracey@usherkidsaustralia.com.
We’re hoping to see as many of our families get up to beautiful Brisbane for this event.
Family Day in Melbourne
It was wonderful to bring some of our UsherKids families together and meet in person for the very first time at our Family Day in Parkville (Melbourne) in March. Lovely to see all the siblings and some extended family members there too.
During the morning session, the children had lots of fun getting to know one another through play while Dr Kim Hazendonk (Positive Brain) gave a great presentation to the adults. Kim’s session was full of practical, evidence-based tips on how to manage the stressors in our lives and promote the release of happy chemicals in our brains.
After lunch, the wildlife incursion was a huge hit with all the children and even some of the adults. Everyone had the opportunity to hold the amazing wildlife and we learnt all about their habitat, diet, lifespan, and even their poo!! The snakes and wombat proved very popular.
Seeing the families that day reinforced our desire at UsherKids to provide more opportunities for our families to connect in person. Hopefully, you can join us in September in Brisbane.
Parent Support Calls
These informal zoom calls give UsherKids Australia parents the opportunity to meet and share their experiences with other parents who have children with type 1 Usher syndrome. UsherKids Australia Case Coordinator Tracey Johnston will facilitate the calls, sometimes inviting a guest speaker or focusing on type-specific topics.
Type 1 Parents:
February 1
May 3
August 2
November 1
Type 2 Parents:
February 28
May 30
August 29
November 28
Time TBC but are on in the evening after kid’s bedtimes.
Register for these calls by emailing tracey@usherkidsaustralia.com.
Parent Support Calls
These informal zoom calls give UsherKids Australia parents the opportunity to meet and share their experiences with other parents who have children with type 1 Usher syndrome. UsherKids Australia Case Coordinator Tracey Johnston will facilitate the calls, sometimes inviting a guest speaker or focusing on type-specific topics.
Type 1 Parents:
February 1
May 3
August 2
November 1
Type 2 Parents:
February 28
May 30
August 29
November 28
Time TBC but are on in the evening after kid’s bedtimes.
Register for these calls by emailing tracey@usherkidsaustralia.com.
Usher Syndrome Awareness Day 2023
Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 16 this year.
Celebrating our Growing Global Community
Usher Syndrome Awareness Day seeks to bring attention to the most common genetic cause of combined deafness and blindness. By raising awareness around the world, we connect those living with Usher syndrome and accelerate research towards treatments and a cure.
Usher Syndrome Awareness Day 2023
Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 16 this year.
Celebrating our Growing Global Community
Usher Syndrome Awareness Day seeks to bring attention to the most common genetic cause of combined deafness and blindness. By raising awareness around the world, we connect those living with Usher syndrome and accelerate research towards treatments and a cure.
Usher Teen Camp – July 2025
We are working with our friends at Ava’s Voice and Usher Kids UK to bring an Usher teen camp to Queensland, Australia in July 2025. The week-long camp will provide youth with Usher syndrome ages 11-17 to engage with peers and acquire strategies to resolve challenges and foster connections that will last a lifetime. Young adults with Usher syndrome aged 18-26 will be invited to join as mentors.
We are also working on having a separate program for our parents close by. Stay tuned……..
Expressions of interest are now open – info@usherkidsaustralia.com
Usher Teen Camp – July 2025
We are working with our friends at Ava’s Voice and Usher Kids UK to bring an Usher teen camp to Queensland, Australia in July 2025. The week-long camp will provide youth with Usher syndrome ages 11-17 to engage with peers and acquire strategies to resolve challenges and foster connections that will last a lifetime. Young adults with Usher syndrome aged 18-26 will be invited to join as mentors.
We are also working on having a separate program for our parents close by. Stay tuned……..
Expressions of interest are now open – info@usherkidsaustralia.com
UsherKids Australia is proud to be a member
and active contributor to these organisations
