Join us at various events during the year and help create connections within the Usher community. 

UsherKids Australia has Charity and deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC). All donations over $2 are tax deductible.

Family Day March 23

SAVE THE DATE – Sunday 26 March 2023

Family Day in Melbourne

We will be hosting a Family Day in Melbourne on Sunday 26th March 2023 for families of children with Usher syndrome of all ages. More details will follow in the coming weeks!

Register your interest by emailing  

Family 2 Family Monthly Online Calls

When: On the 3rd Friday of each month (August to May). Times vary but usually early morning to midday.

What: UsherKids Australia, together with Usher Kids UK and Ava’s Voice in the USA, facilitate these monthly calls with parents of children with Usher syndrome as an opportunity to discuss life with Usher in a safe and supportive environment. In 2023 we’ll welcome Usher Syndrome Ireland to these calls to help us grow our parent support networks in Ireland.

Register for these calls at


Times for 2023:

January 20th (AEDT) at 12pm

February 17th (AEDT) at 12pm

March 17th (AEDT) at 11am

April 21st (AEST) at 10am

May 19th (AEST) at 10am 

Family to Family Calls poster
Family Day March 23

Parent Support Calls

These informal zoom calls give UsherKids Australia parents the opportunity to meet and share their experiences with other parents who have children with type 1 Usher syndrome. UsherKids Australia Case Coordinator Tracey Johnston will facilitate the calls, sometimes inviting a guest speaker or focusing on type-specific topics.


Type 1 Parents:

February 1

May 3

August 2

November 1


Type 2 Parents:

February 28

May 30

August 29

November 28

Time TBC but are on in the evening after kid’s bedtimes.


Register for these calls by emailing

Usher Syndrome Awareness Day 2023

Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 16 this year. 

Celebrating our Growing Global Community

Usher Syndrome Awareness Day seeks to bring attention to the most common genetic cause of combined deafness and blindness. By raising awareness around the world, we connect those living with Usher syndrome and accelerate research towards treatments and a cure. 


To celebrate this important date in our calendar, UsherKids Australia will be hosting a Family Day – location to be confirmed. 


Usher Teen Camp – July 2025

We are working with our friends at Ava’s Voice and Usher Kids UK to bring an Usher teen camp to Queensland, Australia in July 2025.  The week-long camp will provide youth with Usher syndrome ages 11-17 to engage with peers and acquire strategies to resolve challenges and foster connections that will last a lifetime.   Young adults with Usher syndrome aged 18-26 will be invited to join as mentors. 


We are also working on having a separate program for our parents close by.  Stay tuned……..


Expressions of interest are now open –  

UsherKids Australia is a proud member
of the following organisations.

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