Events

Join us at various events during the year and help create connections within the Usher community. 

UsherKids Australia has Charity and deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC). All donations over $2 are tax deductible.

SAVE THE DATE Usher Family Day September 2023

Family Day in Sydney – March 24th, 2024

Celebrating our Growing Community

We will be hosting a Family Day in Sydney on Sunday, 24th March 2023 from 10am-3pm. The day will include a panel of young people with Usher syndrome sharing their insights and experiences of growing up with this condition. It will also include lots of fun things for the children and teens.  

If you would like more details, please email tracey@usherkidsaustralia.com.

We’re hoping to see as many of our families get up to beautiful Sydney for this event.

Family Day in Adelaide – September 21st, 2024 

Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 21st this year. 

Celebrating our Growing Global Community

Usher Syndrome Awareness Day seeks to bring attention to the most common genetic cause of combined deafness and blindness. By raising awareness around the world, we connect those living with Usher syndrome and accelerate research towards treatments and a cure.  

Join us for our next Family Day as we visit South Australia for the very first time!  

 

Family Day March 23

2024 Parent Support Calls

These informal zoom calls give UsherKids Australia parents the opportunity to meet and share their experiences with other parents who have children with Usher syndrome. UsherKids Australia Case Coordinator Tracey Johnston will facilitate the calls, sometimes inviting a guest speaker or focusing on type-specific topics.

 

March 5th, 2024 

April 16th, 2024 Guest Speaker 

May 28th, 2024

August 6th, 2024 Guest Speaker 

September 17th, 2024

October  29th, 2024 Guest Speaker 

 

Time TBC but are on in the evening after kid’s bedtimes.

 

Register for these calls by emailing tracey@usherkidsaustralia.com.

Family Day March 23

2024 USHchats

Ava’s Voice, UsherKids Australia, Usher Kids UK, Usher Syndrome Ireland, Usher Syndrome Coalition and Save Sight Now Europe proudly present our USHchats for 2024.

Monthly virtual connection for parents and guardians of children and young people with Usher syndrome (birth – 25 years).

Thursday, February 15th, 2024

Role models with USH from across the globe share their key milestones and experiences with our USHfamily 

9:00am GMT/ 8:00pm AEDT NEW TIME!!!

3:00pm EST/ 8:00pm GMT (English/Spanish)

8:00pm EST/ 12:00pm AEDT (Friday 16th)

 

Register for these calls at http://tinyurl.com/USHchats

 

Family Day March 23

2024 Parent Support Calls

These informal zoom calls give UsherKids Australia parents the opportunity to meet and share their experiences with other parents who have children with Usher syndrome. UsherKids Australia Case Coordinator Tracey Johnston will facilitate the calls, sometimes inviting a guest speaker or focusing on type-specific topics.

 

March 5th, 2024 

April 16th, 2024 Guest Speaker on Orientation and Mobility

May 28th, 2024

August 6th, 2024 Guest Speaker on NDIS

September 17th, 2024

October  29th, 2024 Guest Speaker on Vision

 

Time TBC but are on in the evening after kid’s bedtimes.

 

Register for these calls by emailing tracey@usherkidsaustralia.com.

Family Day March 23

Usher Teen Camp – July 2025

We are working with our friends at Ava’s Voice and Usher Kids UK to bring an Usher teen camp to Queensland, Australia in July 2025.  The week-long camp will provide youth with Usher syndrome ages 11-17 to engage with peers and acquire strategies to resolve challenges and foster connections that will last a lifetime.   Young adults with Usher syndrome aged 18-26 will be invited to join as mentors. 

 We are also working on having a separate program for our parents close by.  Stay tuned……..

 Expressions of interest are now open – info@usherkidsaustralia.com  

Usher Teen Camp – July 2025

We are working with our friends at Ava’s Voice and Usher Kids UK to bring an Usher teen camp to Queensland, Australia in July 2025.  The week-long camp will provide youth with Usher syndrome ages 11-17 to engage with peers and acquire strategies to resolve challenges and foster connections that will last a lifetime.   Young adults with Usher syndrome aged 18-26 will be invited to join as mentors. 

 We are also working on having a separate program for our parents close by.  Stay tuned……..

 Expressions of interest are now open – info@usherkidsaustralia.com  

UsherKids Australia is proud to be a member

and active contributor to these organisations

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