by Emily Shepard | Jul 19, 2026 | News
So much fun, so much effort, and so much love towards getting our young people with Usher syndrome to camp next year. Thanks to everyone for joining us, helping spread awareness and raising funds for UsherKids Australia. There still time to donate...
by Emily Shepard | Jun 18, 2026 | News
Today, ahead of Deafblind Awareness Week, I had the privilege of standing on the steps of Parliament House alongside my son Louis, members of the deafblind community, families, advocates and sector partners to raise awareness of deafblindness and the need for...
by Emily Shepard | Jun 16, 2026 | News
We are incredibly proud to share that UsherKids Australia has been named a finalist in the 2025–26 Research Australia Health and Medical Research Awards. Research Australia’s awards recognise outstanding contributions to health and medical research across...
by Emily Shepard | May 23, 2026 | News
What a weekend. Over 80 people joined us for the UsherKids Australia Family Weekend – babies, children, teens, young adults, parents, grandparents, siblings, volunteers and staff – all coming together from far and wide to connect, learn, support and simply...
by Emily Shepard | May 3, 2026 | News
Now available!!!!! Usher Syndrome – About Us, By Us is a lived-experience resource on Usher Syndrome, covering its types, prevalence, and the realities of parenting, education, work, and aging, alongside communication and wellness strategies. Designed for students,...
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