Our purpose is to see children and families living with Usher syndrome love their lives.

Our mission is to empower the Usher community through support, connection and knowledge.  

Lauren-Ayton

 

UsherKids Australia welcomes new board member

We are excited to announce a valuable addition to our UsherKids Australia family. Please join us in welcoming Associate Professor Lauren Ayton as our newest Board Member.

 

 Sky-high artwork unveiled by athlete and artist, Maggie Sandles 

Paratriathlete Maggie Sandles is well known for her sporting prowess, excelling in netball, rowing and triathlon. But her “can do” attitude has resulted in leaving a different mark on the community – a 6-metre mark. Maggie has Usher syndrome Type 1 and won a national art competition run by Deaf Children Australia for deaf and hard-of-hearing people to explore their creative sides.

 

Maggie Sandles Artwork

UsherKids Australia has Charity and deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC). All donations over $2 are tax deductible.

About Usher Syndrome

Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).

About Usher Syndrome

Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).

Get Support

From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.

Get Support

From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.

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