Our purpose is to see children and families living with Usher syndrome love their lives.

Our mission is to empower the Usher community through support, connection and knowledge.  

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Emily Shepard, co-founder of Usher Kids Australia, mum of peashoot Louis, choir member and cricketer chats to Mandy and Kate from Too Peas in a Podcast.

Emily shares her story about Louis’ diagnosis, choosing schools and the challenges of managing his condition now he’s in his teens. Emily also loves taking time for herself by participating in PopChoir and playing cricket! She even started an All Abilities program at her local club for kids and teens with disabilities.

 

UsherKids Australia has Charity and deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC). All donations over $2 are tax deductible.

About Usher Syndrome

Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).

About Usher Syndrome

Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).

Get Support

From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.

Get Support

From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.

Latest News

FAMILY CIRCUS DAY 2022

FAMILY CIRCUS DAY 2022

Join UsherKids Australia for our Family Circus Day and meet some of your fellow Usher families! The day is open to all families of children with...

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