Our purpose: To see children and young people with Usher syndrome and their families love their lives.

Our commitment: To empower the Usher community through support, connection and knowledge.  

📍 Magnetic Island, Queensland
📅 5–11 July 2027

We’re already looking ahead to our next UsherKids Australia Youth Camp in July 2027, and we’re inviting Expressions of Interest from young people aged 11–28, whether you’re interested in attending as a camper or getting involved as a mentor.

Camper Expression of Interest:
 https://usherkidsaustralia.com/usherkids-australia-youth-camp-2026-expression-of-interest-for-campers/

Mentor Expression of Interest: 
https://usherkidsaustralia.com/usherkids-australia-youth-camp-2026-mentor-expression-of-interest/

UsherKids Australia has Charity and deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC). All donations over $2 are tax deductible.

About Usher Syndrome

Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).

About Usher Syndrome

Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).

Get Support

From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.

Get Support

From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.

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