Our purpose is to see children and families living with Usher syndrome love their lives.
Our mission is to empower the Usher community through support, connection and knowledge.
Usher Syndrome Awareness Day 16 September 2023
Family Day in Brisbane
Celebrating our Growing Global Community
Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 16 this year. Usher Syndrome Awareness Day seeks to bring attention to the most common genetic cause of combined deafness and blindness. By raising awareness around the world, we connect those living with Usher syndrome and accelerate research towards treatments and a cure.
Following on from the success of the Newcastle and Melbourne Family Day events we are excitedly planning a Family Day in Brisbane to celebrate this important date in our calendar. For more information, visit our Events page here: more
UsherKids Australia has Charity and deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC). All donations over $2 are tax deductible.
About Usher Syndrome
Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).
About Usher Syndrome
Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).
Get Support
From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.
Get Support
From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.
Latest News
Upcoming Brisbane Family Day September 16
Following on from the success of the Newcastle and Melbourne Family Day events we are excitedly planning a Family Day in Brisbane on September 16,...
Usher Family Day – March 26th in Melbourne
We're very excited to be hosting a Family Day in Parkville (Melbourne) on Sunday 26th March 2023 for families of children with Usher syndrome of all...
Happy New Year!
As we finish up our work for another year, we wanted to take the opportunity to wish our family, friends and colleagues a safe and restful break,...
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