Our purpose: To see children and young people with Usher syndrome and their families love their lives.
Our commitment: To empower the Usher community through support, connection and knowledge.
We’re excited to be coming together at the University of Sydney this September to celebrate Usher Syndrome Awareness Day and officially launch Usher Syndrome: About Us, by Us in Sydney.
Tuesday 29 September 2026
4pm–6pm
Susan Wakil Health Building, University of Sydney
Afternoon tea provided
Books available to purchase and have signed Everyone welcomeCome along, meet the community, learn something new and help us celebrate Usher Syndrome Awareness Day.
UsherKids Australia has Charity and deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC). All donations over $2 are tax deductible.
About Usher Syndrome
Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).
About Usher Syndrome
Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).
Get Support
From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.
Get Support
From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.
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