Our purpose is to see children and families living with Usher syndrome love their lives.
Our mission is to empower the Usher community through support, connection and knowledge.
Usher Syndrome Awareness Day 16 September 2023
Research Conference & Family Day in Brisbane
Celebrating our Growing Global Community
Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 16 this year. Usher Syndrome Awareness Day seeks to bring attention to the most common genetic cause of combined deafness and blindness. By raising awareness around the world, we connect those living with Usher syndrome and accelerate research towards treatments and a cure.
To celebrate this important event, we will be hosting a Research Conference & Family Day in Brisbane. For more information, visit our Events page here: more
UsherKids Australia has Charity and deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC). All donations over $2 are tax deductible.
About Usher Syndrome
Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).
About Usher Syndrome
Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).
Get Support
From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.
Get Support
From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.
Latest News
Response to proposed changes to Specialist Teacher supports in Victorian schools
UsherKids Australia strongly opposes the changes to Specialist Teacher support for students with vision and hearing impairments. The proposal by...
Improving Care for Children with Usher Syndrome
UsherKids Australia, together with leading researchers from the University of Melbourne, has recently published research investigating how aware...
Upcoming Brisbane Family Day September 16
Following on from the success of the Newcastle and Melbourne Family Day events we are excitedly planning a Family Day in Brisbane on September 16,...
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