by Emily Shepard | May 1, 2025 | Media, News
Usher syndrome is a rare genetic condition that causes hearing loss and progressive vision loss. It is the leading cause of hereditary deafblindness. While more children are now being diagnosed early through genetic testing, the progressive nature of the vision loss...
by Emily Shepard | Apr 29, 2025 | Media, News
This week, we proudly join the international community in recognising Deafblind Awareness Week, and for the first time, July 27 has officially been declared International Day of Deafblindness by the United Nations. Deafblindness is an umbrella term used to describe a...
by Emily Shepard | Mar 4, 2025 | Media, News
We’re thrilled to share the recording of the Inherited Retinal Disease Breakfast Symposium, hosted by Kiora Pharmaceuticals in Adelaide. This special event featured Emily Shepard and Professor Lauren Ayton, who brought their unique perspectives to both the Lived...
by Emily Shepard | Nov 18, 2021 | Media, News
UsherKids Australia co-founder and Director Emily Shepard has been recognised by Rotary Melbourne by being named the winner of the Club’s Sir John Reid Community Service Award for 2021. The Award is given each year to honour an individual in the community whose...
by Emily Shepard | Oct 19, 2021 | Media
Return to Onsite Learning_Information and Strategies for Students with Hearing Loss_2021 Here is a great resource as our Victorian families prepare to RETURN TO ONSITE LEARNING. Strategies to support students with a hearing loss and their teachers – Implications...
by Emily Shepard | Sep 7, 2021 | Media
More than 400,000 people across the world are living with Usher syndrome. To celebrate Usher Syndrome Awareness Day on 18 September 2021, we have created a range of social media tools to help raise the profile of this rare disease and the impact it has on...
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