by Emily Shepard | Jan 27, 2026 | News
We’re proud to share our latest publication in Vision Rehabilitation International: “Beyond Clinical Assessments: Advocating for Early Support for Children with Usher Syndrome in Australia.” This article highlights how advances in genetic testing allow for early...
by Emily Shepard | Nov 3, 2025 | News
We had the privilege of attending the IRD Patient & Family Engagement Day, bringing together people impacted by inherited retinal disease, researchers, and clinicians. The day was full of curiosity, conversation, and collaboration, showing just how vital lived...
by Emily Shepard | Oct 9, 2025 | News
Last night we were proud to join the launch of CERA’s Hope in Sight Giving Day at the Vision Expo, a powerful celebration of innovation, courage and community. Louis and I were honoured to share our story alongside Professor Lauren Ayton, whose research is bringing...
by Emily Shepard | Jul 15, 2025 | News
What a week!!! We have just returned home from the trip of a lifetime – our first-ever Usher Syndrome Youth Camp and Parent & Family Retreat was a resounding success on all accounts. We even managed to collect some vital qualitative data from our teens and...
by Emily Shepard | Jun 28, 2025 | News
This week, we proudly join the international community in recognising Deafblind Awareness Week, and for the first time, July 27 has officially been declared International Day of Deafblindness by the United Nations. Deafblindness is an umbrella term used to describe a...
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