Genomic Testing Access for Hearing Loss Must Catch Up to the Evidence

Usher Syndrome – About Us, By Us is a lived-experience resource on Usher Syndrome, covering its types, prevalence, and the realities of parenting, education, work, and aging, alongside communication and wellness strategies. Designed for students, professionals, policymakers, and families, it builds understanding of the needs and experiences of those living with the condition.

A must-read for anyone wanting to better understand, support, and advocate alongside the Usher community.

Real experiences.

Real strategies.

Real understanding.

Available to purchase here:

https://livedplacespublishing.com/book/isbn/9781917566124?srsltid=AfmBOoqHfrfh5k7XECTlI9ifPoyPNWensTlx_vqThs7QxlyyPWD0q8yk&fbclid=IwY2xjawUB1WNwZG9mAWV4dG4DYWVtAjEwAGJyaWQRMWRmaUdZOWxaYVFIeDVwajVzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeUA8GVbDaATLE09Wg5wJ-825LB8LLoD2qOkyuMWTJliNMW7fOg6w5xdnjd3Y_aem_ALYmuRBbfLL3syEi6p8JAA