Resources
Vision
UsherKids Australia Eye Clinic Video – This video shows the various tests to assess visual function, retinal imaging and specialised vision electrophysiology assessments for patients with Usher syndrome. It describes ways parents can prepare their children for undergoing eye tests and may also be useful to show older children so they know what to expect when attending the clinic.
Understanding Retinitis Pigmentosa (University of Michigan Kellogg Eye Centre) – A comprehensive and detailed resource on Retinitis Pigmentosa. Note: This resource was developed in USA, meaning some of the treatment guidelines and supports may differ from those available in Australia.
eyeMatters – How the Eye Works – This is a fact sheet on how the eye works and basic eye anatomy.
Retinitis Pigmentosa (Centre for Eye Research Australia) – The booklet provides information to individuals with retinitis pigmentosa (RP) and their families. It provides medical information on RP as well as providing knowledge regarding supports and daily living.
Eye Conditions-Usher syndrome (Centre for Eye Research Australia) – This website provides an overview of Usher syndrome, including its causes, common symptoms and management strategies.
Keeping Young Eyes Healthy (Centre for Eye Research Australia) – This guide contains general information relating to eye health for children and what you can do to protect your child’s vision for the future.
Retina Australia Guide to financial assistance supports.
Retina Australia Guide for friends of the newly diagnosed
Retina Australia Guide for parents of a child diagnosed with an inherited retinal disease
Retina Australia Guide for the newly diagnosed.
