We are delighted to share our story about a collaborative research project between UsherKids Australia and The University of Melbourne Melbourne Disability Institute to address the needs of families with young children with Usher syndrome across Australia.

BRINGING ANSWERS TO CHILDREN WITH A LITTLE-KNOWN GENETIC CONDITION

A University of Melbourne collaboration is helping to uncover the real needs of children and families facing a future with Usher SyndromeBy Sarah Marinos, University of Melbourne

Emily Shepard spent the first three-and-a-half years of her son’s life searching for answers. Mother’s instinct and closely observing Louis’s interactions with his older sister, family and friends convinced her that her son had an underlying health issue.

Read the full article HERE

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