More than 400,000 people across the world are living with Usher syndrome. To celebrate Usher Syndrome Awareness Day on 18 September 2021, we have created a range of social media tools to help raise the profile of this rare disease and the impact it has on patients’ lives.

Download the pack below, share them on your social media channels, and help us raise awareness of Usher syndrome!


Download Social Media Tools






























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