For Parents and Carers
Tough Talks: Talking to Children about sight loss – Royal National Institute for Blind People (UK) – General recommendations for parents on how to discuss vision loss with children
Information about vision impairment: Guide for parents – Royal National Institute for Blind People (UK) – This resource answers some of the first questions parents and carers may want to ask about their child’s vision. It presents basic information about eyes and eye conditions, and explains what you can do to help your child.
Talking to Your Child About Their Diagnosis – Sense (UK) – Information for parents on how to talk about Usher syndrome with their children.
Guide for parents and families on supporting children and young people with a diagnosis of Usher Syndrome – Sense (UK) has created this guide to help parents talk to their children about Usher syndrome.
When Should You Tell Your Child That He or She Has Usher Syndrome? Article by Mark Dunning (parent) reprinted by Noisy Vision (Italy).