Resources for Parents - UsherKids Australia | Usher Syndrome Support Australia

Resources

For Parents and Carers

Royal National Institute of Blind People (UK) - Tough Talks - Talking to children about sight loss

Tough Talks: Talking to Children about sight loss – Royal National Institute for Blind People (UK) – General recommendations for parents on how to discuss vision loss with children

Royal National Institute of Blind People (UK) - Information about Vision Impairment Guide for parents

Information about vision impairment: Guide for parents – Royal National Institute for Blind People (UK) – This resource answers some of the first questions parents and carers may want to ask about their child’s vision. It presents basic information about eyes and eye conditions, and explains what you can do to help your child.

Sense (UK) Usher Syndrome- What do I tell my child?

Talking to Your Child About Their Diagnosis – Sense (UK) – Information for parents on how to talk about Usher syndrome with their children.

Sense (UK) - Guidance for parents and families on support children and young people with Usher syndrome

Guide for parents and families on supporting children and young people with a diagnosis of Usher Syndrome – Sense (UK) has created this guide to help parents talk to their children about Usher syndrome.

Noisy Vision (Italy) - When should you tell your child that they have Usher syndrome?

When Should You Tell Your Child That He or She Has Usher Syndrome? Article by Mark Dunning (parent) reprinted by Noisy Vision (Italy).

Look (UK) - How to talk to your child about Usher syndrome

How to talk to your child about Usher Syndrome with Dr. Ian McCubbi. Blog post from LOOK (UK)

UsherKids Australia: Video that discusses some considerations parents may find helpful for when their child is starting school.