Enhancing the lives of children with Usher Syndrome in Australia through information, collaboration and connection.

Enhancing the lives of children with Usher Syndrome in Australia through information, collaboration and connection.

About Usher Syndrome

Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).

Get Support

From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.

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UsherKids Australia has Charity and Deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC).   All donations over $2 are tax deductible.

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