A huge thank you to Guide Dogs Australia for hosting a fantastic think-tank this week at their beautiful Kew campus.
Together with partners across research, health and community organisations, we explored how we can better support children and young people with dual deaf-blindness, including:
• Strengthening pathways into low vision and hearing services
• Engaging the next generation of health professional students in this specialised field
• The vital role of specialist visiting teachers supporting children in schools
• And many other ideas aimed at improving coordinated care and support for families.
These conversations matter. Children with complex sensory conditions like Usher syndrome often sit between systems; hearing, vision, education and disability services, and it takes collaboration across sectors to ensure no one falls through the gaps.
We’re incredibly grateful to Guide Dogs Victoria for bringing people together from across the ecosystem, including colleagues from The University of Melbourne, Centre for Eye Research Australia, The Royal Victorian Eye and Ear Hospital, and others who share a commitment to improving outcomes for children with sensory disabilities.
And of course… the highlight of visiting the Guide Dogs campus will always be the puppies 
. Zach and Waffles.
. Zach and Waffles.These conversations are also shaping the programs we deliver directly to families. We’re looking forward to bringing many of these ideas into our upcoming UsherKids Family Weekend, where children and young people with Usher syndrome, siblings, parents and extended family come together for connection, learning and community.
Because while research and systems change are essential, families also need support today, spaces to connect, share experiences, and know they are not navigating this journey alone.
Thank you again to everyone who contributed to such thoughtful and energising discussions.
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