Enhancing the lives of children with Usher Syndrome in Australia through information, collaboration and connection.

Enhancing the lives of children with Usher Syndrome in Australia through information, collaboration and connection.

Registrations are now open for our Transitions Conference in March 2022!
Transitions conference logo
Check out our new Hearing Tests Educational Videos

Subscribe to Our newsletter

Latest News

Emily Shepard receives the Sir John Reid Community Service Award from Rotary Melbourne President Reg Smith

Sir John Reid Community Service Rotary Award

November 18, 2021

IMG_0657

RETURN TO ONSITE LEARNING – Strategies to support students with a hearing loss and their teachers

October 19, 2021

DB2022-Header-website-hero (4)

11th National Deafblind Conference June 29 – July 1 2022, Fremantle WA

October 5, 2021

Jett's Journey-2

Jett’s Journey – 13 November, 2021

September 18, 2021

About Usher Syndrome

Usher syndrome is a genetic condition characterised by hearing loss or deafness, the progressive loss of vision and in some cases, vestibular dysfunction. The loss of vision is caused by an eye disease called Retinitis Pigmentosa (RP), which affects the light-sensitive area of tissue on the back of the eye (the retina).

Get Support

From inspiring personal Usher stories, to a range of practical resources, our Support section will give you information and guidance on a range of support services available nationally for children with Usher syndrome, as well as some helpful facts about the National Disability Insurance Scheme.

UsherKids Australia has Charity and Deductible Gift Recipient (DGR) status from The Australian Charities and Not-for-profits Commission (ACNC).   All donations over $2 are tax deductible.

UsherKids Australia is a proud member of the following organisations: 

Skip to content